Showing posts with label congenital heart defect. Show all posts
Showing posts with label congenital heart defect. Show all posts

Friday, April 22, 2011

A Letter to Medical Students


credit

Dear Baby Doctors,
This is an open letter to all of you med students, interns, and residents out there who are training to become real, full-fledged doctors; specifically those that will be dealing with patients living with a chronic illness. Like me. *grin* Think of this letter as a guide, as helpful tips and advice from the other side of the stethoscope.

1) Check your ego at the door
I know that House is all the rage on the boob tube, and don't get me wrong, I love me some Hugh Laurie but if you think you can get away with treating a patient like Gregory House treats his, think again. Grumpy, in-your-face, Vicodin popping, egomaniac doctors make for great television but a poor doctor IRL.

2) Newsflash: You are not God
Guess what? You are, in all likelihood, not going to cure me. Oh, sure, you'll probably be able to patch me up and get me to my next few birthdays - and trust me, I will thank you for it! - but as far as curing me, or most of my chronic illness friends? No. It's best that you learn this now and get used to the idea because I don't want you to beat yourself up later on. You do tremendous work and it isn't fair to anyone, especially yourselves, when you cannot meet unattainable expectations. It isn't about fixing us; it's about treatment and communication. If, by chance, you happen to sneeze into some petri dish and cure cancer or have an epiphany at 3:41 AM about how to rewire all of my innards, great. But don't hold your breath.

3) I want to like you, but I can't (initially)
I've had a rough time dealing with med students in my childhood. For years I was their guinea pig. I'm meeting you with a chip on my shoulder, a sour attitude and the stink-eye. I'm gonna eye you up and down gangsta style. All of this will be within the first thirty seconds while your attending (my doc) explains the extra body (that's you) in the room. If you follow the warm meet and greet as advised, though, my chip will crumble, my attitude will brighten and my eyes with gleam with welcome.

4) You are more afraid of me than I am of you
Just a fact. Doesn't have anything to do with you personally, merely that I am used to this dog and pony show.

5) It's all about relating
Frankly, I'm not impressed by your clean white coat with your name embroidered on it or the fact that your handwriting is on par with the Manson family, or how many meds you can potentially prescribe me. What will impress me is your knowledge of Harry Potter or the latest season of True Blood. You'll be my BFF then, bb.

6) Know Thyself
I know that you're all learned and stuff, but your chronic illness patient lives in their body 24/7 and some, like myself, have been living with their chronic illness since birth. That is a substantial amount of time to get to know ones body and become instinctual when shit hits the fan. It is vital for you to disregard all of that old school mumbo jumbo your hard-ass professor said when s/he told you that your patient knows dick. It is your position to team up with your patient, your NP and anyone else overseeing your patient and establish open, honest communication that includes you listening to what they are telling you about their body and you using all of that book learnin' to put the pieces of the puzzle together. Together, this combo will allow you to you give your patient the best possible treatment, which turns you into your life-saving alter-ego, SUPER DOCTOR! You won't have a cape or anything, but your awesome powers of communication, trust and honesty will endear your patients to you. Who knows, you may even get to save some lives along the way.

7) Warning: patient bites
My biggest beef with med students is the robotic way in which they have treated me in the past; like some lifeless, nameless specimen that was there right to poke and prod as they saw fit. Now? I bite back, so I as I've suggested before, greet your observation patient with a warm smile, a friendly handshake and some small talk. We'll not only love you for it; we'll remember your name and may even keep an eye/ear out for where you go. If you stick around the same hospital we attend, hey, we might just want to put you on our team. Isn't that something?

Well, I hope you're not too insulted (let's face it; this entire post is vengeance for all of those times when some smug 25 year old put the cold-ass end of a stethoscope against my skin and hissed at me when I cringed) and I hope, despite my brass, you learned something new (other than you never, ever want me for a patient). Remember: It's all about mutual respect, open communication, and knowing what's going on in the zany life of Sookie Stackhouse!

And if you are insulted...lighten up, it's my blog. Be thankful you haven't had your chest cavity sawed open four times and just watch this video of baby animals:


Baby Animals!


By the way: I'm totally available for in-person speeches about building healthy, sustainable doctor-patient relationships, emphasis on chronic illness patients! ;)

Monday, April 18, 2011

Matters of the Heart

Ever since I took an interest in writing (since the age of twelve) I've been harped on to write about my heart condition. Initially, I fought it – still do sometimes – because it's something I live with that I don't want to live with and when I write, I want to write about topics that bring me joy and might help and inspire others. Surprisingly, my heart condition does not bring me joy. Even more surprising, I'm kind of expert on it because it's something that fits so seamlessly into my life and basic decisions I make that I hardly notice.

What I have noticed within the congenital heart defect community is that we all have questions - and we all want to help one another, with our money, time, political efforts, networking, volunteering, etc. but who is answering the basic, every day questions of living life and how to deal with mundane issues that are most often taken for granted amongst "healthy" people? Questions about being in the work force, college, dealing with peer pressure, being teased as a child, trying to fit in, keeping up with friends, physical education, academia professionals who didn't "get it", doctors who did not listen, doctors who DID listen, long hospital hours, recovering from surgery, depression, etc. are only topics that merely scratch the surface on what I have experienced and am happy to discuss.

What knowledge I may possess might help others, specifically, people with loved ones (parent/children, friends, etc) living with CHD, those that work with people living with a congenital heart defect, and young folk with CHD who are starting to enter adulthood. You may just be a curious passer-by intrigued by this post and want to ask questions. Everyone is my guest and all questions are welcome. There is no subject that is taboo; if I don't feel comfortable or experienced enough to answer your question, I will state so plainly.

I do not pretend to have all of the answers, and I make no guarantees. What I do promise is availability to answer your questions as open and honestly as based on my personal experience. That is all any of us can promise. My only hope here is that perhaps my answers will help someone, and at the very least, others will know they are not alone.